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WE Care Virtual Connections

Connect virtually with other MPS affected members.

 

 

We Care! Building A Community That Understands

Living with MPS impacts the whole family and having people who truly understand your journey can make all the difference. Our monthly We CARE virtual sessions create a warm, welcoming space where families can connect, share experiences, challenges, and triumphs. Whether you’re newly diagnosed or have been on this journey for years, you’ll find understanding, practical advice, and genuine friendship in our We CARE community. Come join in the fun!

 

What Can I Expect?

Our monthly virtual meetings are facilitated by experienced community members who ensure everyone feels welcomed and heard. This is a supportive environment where you can be yourself.
  • Emotional Support: Share your experiences and hear from others who understand the emotional challenges of living with or caring for someone with a rare disease.
  • Practical Advice: Gain insights from other families navigating the healthcare system, treatment options, and day-to-day care.
  • Community Connection: Build friendships with other families who truly get what you’re going through and find comfort in knowing you’re not alone.
  • Expert Guest Speakers: Occasionally, we invite healthcare professionals and experts to discuss topics relevant to your journey, offering valuable resources and advice.

Getting Started

This event is free and available only for members of the Canadian MPS Society. To join your first session, simply register at one of the scheduled events below:

As a mom with a child with a rare disease, it can feel very overwhelming, scary and alone. This group is like an instant family. We cry, we laugh, we feel seen and heard in these chats – and i don’t have the opportunity to do that anywhere else!!

Cristina Chiappetta, Ontario (Mama of Gianna, MPS1)

We Care MPS Next Gen: For Young Adults

We’re excited to announce the launch of We Care Next Gen, virtual sessions dedicated to Teen (aged 13+) & Young Adults living with MPS.

 

This isn’t your typical support group – Think of it as a casual hangout where you can meet others your age who understand the MPS life, talk about the stuff that actually matters to you, and share what’s really on your mind about school, social life, and everything in between.

It’s a chance to make real connections with your peers who truly get it, and maybe even make some new friends along the way.

 

We Care MPS Next Gen: Your space. Your crowd. Your vibe.

 

This event is free and available only for our young members of the Canadian MPS Society living with MPS. Be part of this amazing group of young people who understand  exactly what you’re going through!

Hosted by CanMPS members Monika (MPS I) and Sarah (MPS I) two resilient young ladies affected with MPS themselves.
Register for our next We Care Next Gen session below!