May is the month for MPS awareness!

We are proud to partner with over 40 global organizations to raise awareness for MPS around the world. Together with our industry partners and within the International MPS network (IMPSN) we are rolling out a multichannel campaign “It’s About Time” , a global awareness initiative aimed at raising awareness about Mucopolysaccharidosis (MPS) diseases and advocating for improved access to treatment and support for affected individuals and families. 

The “It’s About Time” campaign will include a series of activities and events designed to raise awareness about MPS diseases, reduce stigma and promote understanding and acceptance of individuals with MPS, and advocate for improved access to treatment and research and innovation in the field of MPS diseases. Key components of the campaign will include the development of animated videos, social media campaigns, educational resources, and advocacy efforts.

In the context of the International MPS Day Campaign, the phrase “IT’S ABOUT TIME” serves as a double entendre, carrying two distinct yet intertwined meanings that encapsulate the urgency and significance of the cause: 
 
1. A Statement – Every Second Matters:
First and foremost, “IT’S ABOUT TIME” serves as a statement emphasizing the critical role time plays in the world of MPS. So many aspects of MPS are indeed about time, spanning from the imperative need for timely diagnosis, swift treatment, and continuous support throughout an individual’s journey with the condition. It underscores the reality that every moment counts in the lives of those affected by MPS. Delayed diagnosis can mean prolonged suffering, and timely intervention can make a world of difference. This aspect of the phrase highlights the importance of recognizing time as a crucial factor in the MPS community, where timely action can lead to better outcomes and an improved quality of life.
 
2. A Demand for Action – Shine a Light, Fight and Unite for MPS:
The second layer of meaning in “IT’S ABOUT TIME” represents a call to action. It’s an assertive demand for change in various domains. For instance, when we say, “IT’S ABOUT TIME that babies are diagnosed at birth,” we are advocating for the establishment of early screening programs that can detect MPS in newborns, ensuring swift intervention. Similarly, when we assert, “IT’S ABOUT TIME policy makers ensure equitable access to treatments and supports,” we are demanding that policymakers prioritize equal access to vital resources and therapies for everyone in the MPS community. This interpretation of the phrase underscores the need for immediate and impactful changes in the way we approach MPS, not just as a medical condition but as a societal responsibility.
 
In this clever play of words, “IT’S ABOUT TIME” encapsulates both the essence of urgency within the MPS community and the unwavering demand for proactive changes that can positively impact the lives of those affected by these rare genetic disorders. It becomes a rallying cry that resonates with empathy, compassion, and a determination to make a difference.

We will be posting animations, videos and social posts as part of this international campaign. For our message to go viral, we need it to be shared as widely as possible. Follow us on Facebook, Instagram or LinkedIn.

Find out more at MPS DAY – MPS Network

Learn more about the IMPSN here:  impsn.ca

Canada shines a light on MPS Day!

Iconic landmarks across Canada will light up in blue and yellow on May 15, International MPS Awareness Day. We extend our heartfelt gratitude to all the illuminating partners for extending their support to raise awareness for MPS across Canada.

Join is in raising awareness by taking a selfie in front of one of the iconic landmarks and share on social media with the hashtags #CanMPSSociety #NBS4MPS #MPSDAY #MPSAwarenessDay.

Photos from last year: