Events
MPS Members find events are invaluable for connecting with the MPS community, sharing insights and experiences and knowing they are not alone in their journey.
Upcoming Events
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Past Events
Recordings, presentations and photos from our past events can be found here. Select any of the event postings to access them.
2021 National Family Conference and Gala
Our bi-annual conferences give families affected by MPS & related diseases an opportunity to learn about new research, treatment and care, and to share information and experiences with other...
Resilience in Rare Diagnosis
As part of the Virtual Education and Connection Series, listen to our very special speakers talk about their unique and resilient stories regarding a rare disease diagnosis....
Back to School During COVID-19
Find out what our specialists have to say on dealing with COVID-19 at school.
Christina Gentle at the 2018 RARE Gala
Written and presented by Christina Gentle at the 2018 RARE Gala "Hi everyone, thanks for being here tonight. I’m Christina, Jessica Gentle’s sister. If you were at the Gala last year you might...