News Feed

News from the MPS Community, industry and research.
To view posts by category, click on your chosen category which appears after the date in any of the posts.

We Care NEXT GEN April

Mar 25, 2025 | Upcoming Event, We Care NextGen

UPCOMING 9 April. We Care NEXT GEN Hangout for MPS Youth

We Care April

Mar 24, 2025 | Upcoming Event, We Care

UPCOMING 29 April. We Care monthly gathering for MPS caregivers

Canadian Dental Care Plan

Mar 4, 2025 | News, Resources

Did you know that The Canadian Dental Care Plan (CDCP) is now in operation which can make the cost of dental care more affordable for eligible...

IMPSN MAY 15 CALL OUT

Feb 25, 2025 | News, Uncategorized

Time is precious for all of us, but especially for those living with Mucopolysaccharidosis (MPS). This year's International MPS Day theme—"It's...

May is the month for MPS awareness!

Feb 7, 2025 | News, Upcoming Event

UPCOMING 15 May, MPS Awareness Day

2025 National Family Conference

Jan 20, 2025 | Upcoming Event

UPCOMING 18-20 July: The National Family Conference taking place in July 2025 will coincide with the Society’s 40 Anniversary Gala.

SickKids I-InTERACT-North program

Nov 25, 2024 | News, Resources

SickKids, Toronto has expanded their innovative mental health support program, specifically designed with MPS families in mind. They understand the...

Using Easy To Understand Language In Clinical Trial Summaries For Participants

Jan 22, 2024 | News, Resources

CommuniKIDS – a toolkit to help researchers convey clinical trial results back to participating youth and their families in plain easy to understand language.