Ready to connect with others who truly understand life with MPS? We’re excited to invite you to our next virtual hangout in just two weeks! When: Wednesday 9th April 2025 Time: 7 – 8:00 PM EST / 4 – 5:00 PM PST *To accommodate time zones drop in at any...
Our monthly We Care virtual gathering returns to celebrate the incredible strength of our MPS community with a special spring renewal theme. Join our virtual “We Care” get together where amazing stories sprout and friendships blossom! Like spring flowers...
Every year May 15 is observed internationally, to raise awareness against mucopolysaccharidoses (MPS). MPS are rare genetic disorders in children and adults caused by the absence of a specific enzyme. There are 7 types of MPS. It is estimated that 1 in every 25,000...
UPCOMING 18-20 July: The National Family Conference taking place in July 2025 will coincide with the Society’s 40 Anniversary Gala. This milestone celebration will be even more special as we bring together our community to reflect on our achievements and look to...
