C’est difficile pour moi de dire précisément ce que le mot “Maman” veut dire dans de telles circonstances. Quand Elovic était jeune, il disait maman à toutes les femmes qu’il croisait en leur prenant leur main. Si bien que les femmes riait en lui disant, “Je ne...
We are relatively new to MPS, we only found out in April 2023. Shortly after I was speaking to the doctor that diagnosed Joseph, my son, the doctor had mentioned the MPS society of Canada. Needless to say I reached out not wasting anytime. My wife encouraged me to do...
My name is Édith and my son, Felix-Antoine, has Hunter Syndrome (MPS II). Since many years now, the Canadian MPS Society has helped me connect with other families who has been living the same reality. For example, we attended the Family Conference in Montreal in 2017,...
Our 8-year-old daughter Anaïs has Morquio syndrome. Each additional year spent at her side makes us proud as parents. She is wise and mature beyond her years, with strengths like perseverance, determination, and living each day fully without fear. But as time passes,...
Our daughter Josephine was diagnosed with MPS 1 Hurler Syndrome on her first birthday. After a stem cell transplant at 18 months, she has been doing relatively well. However, she recently became self-conscious about looking and moving differently. She stared to...
When my son Elovic was diagnosed with MPS at age 3, I was in shock. It felt like my world was tearing at the seams. I was faced with so many unknowns and I wasn’t certain how to deal with everything that was being sent my way. That’s when I reached out to the Canadian...
