Mobility for Monika

Life on wheels presents unique challenges when combined with visual impairment, as Monika, living with MPS I knows firsthand. Her journey to obtain and master the use of a powered wheelchair reveals both the complexities of assistive technology and the determination...
2025 National Family Conference

2025 National Family Conference

The National Family Conference in July 2025 will coincide with the Society’s 40 Anniversary Gala. This milestone celebration will be even more special as we bring together our community to reflect on our achievements and look to the future of supporting...
Monika’s Assistive Technology Tips

Monika’s Assistive Technology Tips

In today’s rapidly evolving technological landscape, assistive devices are opening new possibility for individuals living with disabilities. For Monika, the transition to assistive technology wasn’t just a choice—it was a necessity. Unable to use a...
Monika’s Inspiring School Homecoming

Monika’s Inspiring School Homecoming

One of our members, Monika, is transforming challenges into opportunities for change. Living in Quebec with MPS I, she’s turned her experiences into a powerful tool for advocacy. This spring, Monika returned to her old elementary school, armed with a mission to...
Amy Rusak MPS IVA

Amy Rusak MPS IVA

Amy Rusak Obituary December 30, 1978-July 17, 2024 With deep sorrow the family of Amy Louise Patricia Rusak, announce her peaceful passing on Wednesday July 17, 2024. Amy directed her personal care all her life and the services of MAID allowed her to leave on her own...