One of our members, Monika, is transforming challenges into opportunities for change. Living in Quebec with MPS I, she’s turned her experiences into a powerful tool for advocacy. This spring, Monika returned to her old elementary school, armed with a mission to...
Amy Rusak Obituary December 30, 1978-July 17, 2024 With deep sorrow the family of Amy Louise Patricia Rusak, announce her peaceful passing on Wednesday July 17, 2024. Amy directed her personal care all her life and the services of MAID allowed her to leave on her own...
In 1995, siblings Natasha and Damien were diagnosed with the rare genetic condition Morquio Syndrome, also known as Mucopolysaccharidosis IV (MPS IV). This journey has been filled with many challenges, but also incredible accomplishments and personal growth. ...
Loic passed away in February 2024. He was a courageous and determined being and touched the lives of many. Here is is letter to you all recounting his journey in his own words. The original French version is posted below the English translation. “Good evening to...
C’est difficile pour moi de dire précisément ce que le mot “Maman” veut dire dans de telles circonstances. Quand Elovic était jeune, il disait maman à toutes les femmes qu’il croisait en leur prenant leur main. Si bien que les femmes riait en lui disant, “Je ne...
