We are relatively new to MPS, we only found out in April 2023. Shortly after I was speaking to the doctor that diagnosed Joseph, my son, the doctor had mentioned the MPS society of Canada. Needless to say I reached out not wasting anytime. My wife encouraged me to do so. The MPS society got back to me right away, we made the appointment to meet and with the help of Kim, I got to reach out to another family in a very similar situation.
We got the chance to meet more families at the conference in Calgary dealing with similar but different circumstances. The MPS society has us feel that we are not alone, as we feel like we are apart of another community that understands what we are going through.